Natalie Weaver is a disability rights and facial differences advocate. Based in Charlotte, North Carolina, Natalie founded and ran the nonprofit Sophia's Voice for 8 years to raise awareness of healthcare issues, fight for equality, and provide financial assistance to people with disabilities. She also co-founded Advocates for Medically Fragile Kids NC, which successfully fought to stop life-saving healthcare services from being reduced for thousands of disabled children. Natalie has received national recognition for her advocacy work from former President Barack Obama. 

As Natalie’s online presence grew, she began receiving hateful messages about Sophia's appearance and life. This inspired her to take action against social media platforms to protect users with disabilities and facial differences. In 2018, Natalie successfully campaigned to get Twitter to include disability in their reporting tool. She also worked with other social media giants to raise awareness. Natalie’s story has been featured in media outlets like People Magazine, CNN, NBC, ABC, and The Today Show, bringing national attention to the healthcare and discrimination children with facial differences and disabilities face. 

Natalie’s daughter Sophia passed away in 2019, and Natalie vowed to keep her memory and impact alive. She hopes Sophia’s story will help educate others, create positive change, and make the world a better, kinder, and more accepting place. Natalie’s story and Sophia's journey have inspired many and highlighted the importance of healthcare and fighting discrimination in all forms. Her work reminds us that one person can create a wave of positive change.